“I wish I knew what to say.”

I hear this a lot when I’m in the midst of a depressive episode. It’s understandable that someone who doesn’t suffer from depression wouldn’t know what to say. Thankfully there are plenty of resources and services out there to educate oneself and learn. This article, in particular, provides some helpful advice for caregivers, friends, and loved ones of those with mental illness. You can make a difference. You can save a life. Here’s how: https://www.bphope.com/bipolar-buzz/the-best-things-you-can-do-for-a-friend-with-bipolar-disorder/?utm_source=iContact&utm_medium=email&utm_campaign=hh-headlines&utm_content=Weekend+-+Jan15+-+Triggers

New Mental Health Initiative

So grateful to have been included in the mental health initiative panel discussion with Governor Wolf, Rep. Mike Schlossberg, and Dr. Rachel Levine held today at Muhlenberg College. Through new initiatives and candid conversation, I am hopeful that mental health will receive the same attention, care, and consideration as physical health conditions. By speaking out, eliminating barriers, and improving the quantity and quality of resources, countless lives will be saved and hope and dignity will be restored to those suffering from mental health conditions. Stand proud and speak your truth!

To read more about this event, click here

On Recovery

ON RECOVERY

Recently, a friend shared the following post regarding her recovery from cancer on Facebook:

“I’ve been cancer-free for almost nine months. Some days, I can’t tell if I’m recovering from all of the treatments because it takes so long to recover. But, then I look back on the past nine months and realize that I’ve come a long way. Here’s how I know I’m getting better:

-9 Months Ago: Couldn’t do three push-ups without collapsing.

-Today: Did 20 of them.

-9 Months Ago: I could barely lift 20 pounds.

-Yesterday: I did 48kg deadlifts (I forget how to convert that number into pounds).

-9 Months Ago: Couldn’t run a mile in less than 14 minutes.

-Today: I run multiple miles in less than 12-minute miles… getting closer to 11-minute miles.

-9 Months Ago: Sometimes, I slid down the stairs because chemo made my feet numb and it was easier to slide than try to walk down the stairs.

-Today: I still hold onto the railing for dear life, but I let go on the last few stairs, now.

So, when I type it out like this, I see that there is so much to celebrate on this birthday. I’m still praying for a full recovery, but, really, I’m just grateful to be here and to know so many wonderful people”

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Naturally, I was thrilled to read of her progress and all the supportive comments that followed her post. Then I thought about how far I’ve come with my own illness and I felt grateful, too.  But I wondered: what responses would I get if I posted my progress regarding my mental health condition? Would people think I was just seeking attention, exaggerating, or minimizing my friend’s struggle with cancer? Would others even read it? If they did, would they just roll their eyes and move on?  Or would they avoid me the next time they saw me in person, as if my depression might somehow infect them?

I understand that people might not know what to say to someone who struggles from depression, but saying nothing just makes a person feel more ashamed, more worthless, more invisible, and more alone.  So here is my celebration of my progress within the past 7 years

My Recovery from a Mental Health Condition:

“7 years ago, my brain broke and I was diagnosed with bipolar II and major depression. I felt like I was given a death sentence, because there is no cure for mental health conditions and I will never be “free” of it. Some days, I struggle with feelings of worthlessness, fatigue, and loss of purpose and identity; It all seems too much to bear. But, then I remember how far I’ve come and  how much I’ve learned. Here’s how I know I’m doing better:

-7 Years Ago: I was so ashamed and embarrassed, I isolated. I had no idea what was wrong with me or how to get better.  

-Today: I have shared my story publicly and strategies I use to stay well with hundreds of patients and peers and teach NAMI education courses on an ongoing basis.

-7 Years Ago: I had 30 rounds of ECT and had difficulty remembering things and communicating my thoughts.

-Today: I regained my short-term memory, my brain responds to medication, and I am able to manage side effects.

-7 Years Ago: I was unable to work and convinced I’d never work again, let alone teach.

-Today: I have several jobs that allow me to use the skills I’ve spent my whole life building (NCC, NAMI, PBS, and TUTOR DR)

-7 Years Ago: I wanted to die to stop the persistent feelings of worthlessness, hopelessness, and despair

-Today: I enjoy life and I know I have worth, purpose, and hope.

-7 Years Ago, I could barely get out of bed, get dressed, shower, and complete basic household chores

-Today: I get out of bed, complete household chores, and take care of my child on a regular basis.

-7 Years Ago: I didn’t even want to leave the house and took no pleasure in any of the things I once loved.

-Today: I direct school plays, sing in a band, perform  in community theatre, and maintain my own blog.

So, when I type it out like this, I see that there is so much to celebrate, though many will still consider me “weak,” “lazy,” “crazy,” or “over-dramatic.” I know this will be a lifelong battle and there will be relapses, but I’m grateful to be here and to have the knowledge and skills to manage my condition, educate the public, and inspire hope to others with mental health conditions.

Why is a mental health condition treated differently than a physical one? Both are life-threatening medical conditions that affect millions of people. Both require extensive treatments and medications with crippling side effects. Yet someone with cancer is accepted, acknowledged, and supported while someone with a mental health condition is questioned, avoided, shamed, and blamed. No one says to someone with cancer, “get over it,” or “you’re just too lazy to work” or “you just want sympathy” or “there are days I feel like I have cancer, too.”  That would be ridiculous. Yet, people with mental illness hear that all the time. Is a person who is battling mental health condition any less of a warrior, role model, or hero? My friend is resilient, strong, and courageous. So am I. So is anyone who fights daily to overcome any other debilitating disease.  Just because an illness cannot be seen doesn’t mean it isn’t there or is any less serious.

Until mental health conditions are given the same respect, attention, and care as physical health conditions, the stigma surrounding mental illness will continue and people will suffer in silence and shame. Precious lives will be taken that might have been saved. If you are struggling with mental illness, you are not alone. You are seen, heard, honored, and loved more than you could ever know. Fight on, brave warrior—we see you, we hear you, we honor you.

Find Your Roots

As I was gathering material for this new blog site, I revisited an old blog I started 5 years ago. I wish I could have told my younger self not to worry so much and that it would all work out for the best. But then again, I needed to experience those lows to be able to fully appreciate where I’m at now. I needed to surround myself with people who would appreciate me and lift me up rather than undermine me and tear me down. While this site is dedicated toward helping others and advocacy, I started blogging five years ago to make sense of my life and the twists and turns it had taken. I wanted to form meaningful connections with others who struggled in similar ways. I longed to be authentic, but I worried people wouldn’t accept me. So I tried hard to be a person I was not and I felt even worse. You can find my old blog here: https://hidinginthespotlight.wordpress.com/

Now I am content with a smaller circle of friends and I put my time and energy into people who matter–people who will be there when the road is rough, people who aren’t just there when it’s convenient or they want something, people who I can be myself around.

When I was growing up, I remember my mom telling me I would be lucky to find just one true friend in life. At the time, I thought that was absurd and I figured she just wasn’t that popular or outgoing when she was my age. Besides, I had tons of friends. However, as I grew older, I learned the wisdom behind her words. I’m much happier being lifted up my a few loyal friends than surrounded by a group of people who will only end up bringing me down at a time when I need them most. Been there, done that. I respect myself too much now and I have come too far to play games and waste energy. After all, I only have so much energy these days and I need to invest it wisely. Lesson learned, mom.

I found the following tree analogy online, though I’m not sure who originated the idea of the “tree test.” Regardless, it resonates with me and I love it. Here it is:

WHAT KIND OF PERSON ARE YOU?

I have this tree analogy when I think of people in my life, be it friends, family, acquaintances, employees, co-workers, whomever…They are all placed inside what I call my tree test. It goes like this:

LEAF PEOPLE
Some people come into your life and they are like leaves on a tree. They are only there for a season. You can’t depend on them or count on them because they are weak and only there to give you shade. Like leaves, they are there to take what they need and as soon as it gets cold or a wind blows in your life they are gone. You can’t be angry at them, it’s just who they are.

BRANCH PEOPLE
There are some people who come into your life and they are like branches on a tree. They are stronger than leaves, but you have to be careful with them. They will stick around through most seasons, but if you go through a storm or two in your life it’s possible that you could lose them. Most times they break away when it’s tough. Although they are stronger than leaves, you have to test them out before you run out there and put all your weight on them. In most cases they can’t handle too much weight. But again, you can’t be mad with them, it’s just who they are.

ROOT PEOPLE
If you can find some people in your life who are like the roots of a tree then you have found something special. Like the roots of a tree, they are hard to find because they are not trying to be seen. Their only job is to hold you up and help you live a strong and healthy life. If you thrive, they are happy. They stay low key and don’t let the world know that they are there. And if you go through an awful storm they will hold you up. Their job is to hold you up, come what may, and to nourish you, feed you and water you.

Just as a tree has many limbs and many leaves, there are few roots. Look at your own life. How many leaves, branches and roots do you have? What are you in other people’s lives?

Hold On To Your Roots. Be the Root for Someone Else.

Depression Is A Serious Illness That Requires Treatment

“Get over it.” This is one of the most frustrating responses I get during a bout of depression. Telling someone to “get over it” is like telling someone with broken legs to run a marathon. It defies common sense as depression affects the brain’s ability to think clearly in the first place. Others recommend going for a run or to the gym. If it were that simple, I would have already done that. I know that exercise helps with depression, but when just getting out of bed takes monumental effort, there isn’t much energy left for lacing up.

I don’t blame people who give this advice–in fact, I used to be one of them. I could never have realized the debilitating effects of depression until I experienced them firsthand. However, telling someone who is depressed to just “tough it out” or “snap out of it” points to a profound ignorance about mental health. No one would tell someone with cancer to just “deal with it” (nor should they), but depression is a life-threatening disease as well. Contrary to popular belief, depression is not just feeling tired or sad and upset over a recent loss. It is a serious life-long illness that requires treatment and while it can be managed with medication and lifestyle changes, there is no cure.

Sadly, there are many factors that prevent people from seeking help for a mental health condition. Perhaps the biggest deterrent is the stigma associated with mental illness. It seems mental illness only gets attention when some “crazy” person goes on a shooting rampage or a celebrity suffers a mental breakdown or commits suicide? This type of attention sensationalizes mental illness, instills fear, and attributes it to “the others”–often, the rich and famous or the truly criminal or deranged. It only perpetuates the stereotypes and misconceptions surrounding mental illness.  Most mentally ill people do not commit crimes and should not be feared. Furthermore, mental illness affects people of all ages, races, genders, social classes, professions, etc. In fact, the National Institute of Health indicates that mental illness afflicts one in five American adults in any given year, and yet it remains a taboo and often misunderstood subject (2018).

Even though mental illness can be caused by environmental stresses, genetic factors, biochemical imbalances, or a combination, many view those with mental health conditions as “weak” or “lazy” or somehow at fault. Some of my own family members and friends have simply rolled their eyes at my pain and chalked it up to my being “dramatic” or “attention-seeking.” So, not only is someone with mental illness feared, he or she is further burdened with additional labels and made to feel “guilty,” “lazy,” or “ridiculous.” It is no surprise that so many people with mental illness feel rejected or ostracized, which only enhances isolation and feelings of worthlessness. When someone is seriously ill, people often rush to his or her aid delivering meals, sending flowers and cards, visiting them, and/or helping with household tasks or children. Cancer survivors are rightfully referred to as “warriors,” “survivors,” and “heroes.” But even though those with mental illness suffer, fight, and overcome tremendous battles as well, they are seldom honored and celebrated. Many survivors of serious health conditions say they could not have done it without the support of family, friends, colleagues, neighbors, yet many with mental illness find themselves with little support and few allies.

The shame and stigma with mental illness is so prevalent that some would rather suffer in silence (or even end their lives) than admit they have a mental disorder and seek help. Suicide is the 3rd leading cause of death in youths 10-24 and these rates are only rising (NAMI, 2018). Adolescents suffering from clinical depression increased by 37 percent between 2005 and 2014 (John Hopkins Health Review, 2017). Approximately 11 million U.S. adults aged 18 or older had at least one major depressive episode with severe impairment.  (NIH, 2017). Clearly these statistics indicate a dire need for mental health intervention, yet there remains a significant deficit in providers and insurance coverage. Mental health programs continue to be cut or insufficiently funded. Research shows that nearly 60% of adults with a mental illness did not receive treatment (NAMI, 2018). With the lack of accessible treatment and the cost of comprehensive mental health care, on top of the stigma, it is not surprising that depression is the leading cause of disability worldwide (World Health Organization, 2017).

With limited access to care, those with mental illness often self-medicate with drugs and alcohol. In fact, 10.2 million adults have co-occuring mental health and addiction disorders (NAMI, 2018).  Sadly, drugs and alcohol can be quicker and easier to obtain than an appointment with a therapist or psychiatrist. Furthermore, adding drugs and alcohol to mental illness compounds an already precarious situation.  Mental illness can even be triggered by the use of drugs and alcohol. Like most illnesses, early intervention is key and yet little is being done with regards to mental illness other than sensational news coverage and punitive measures. There are valiant community efforts, support groups, dedicated volunteers, and a variety of helpful services and programs, but they are often limited in size and finances.

When will those with mental illness be treated with the dignity they deserve and not forced into silence and shame?  When will mental health coverage and the number of providers and services meet the need? There is no simple solution, but each step, no matter how small, makes a difference.  Each donation to mental health organizations such as the National Alliance on Mental Illness or the American Foundation for Suicide Prevention (AFSP), each time we speak out for those who cannot or lend a hand or call a friend, we are one step closer to change.

We never know who might be affected. It could be a family member you haven’t heard from in awhile, or a friend who suddenly stops coming to social events or a colleague who is out on a “medical leave.” It might be a child who smiles and seems to have it all, but self-harms behind closed doors. Now is the time to speak out, to share stories, to withhold judgment, to offer support, to seek treatment, to break down the wall of stigma before it takes the life of someone you know and love.

Find Your People

This is another thing that took me years to figure out. Years ago, I joined a moms’ meet up group. Even though I had little in common with the majority of the members (except for the fact that we were, of course, moms), I attended the events and tried to connect with everyone. Needless to say, disappointment ensued as I was excluded from meetups that were “not scheduled.” I remember seeing pictures on Facebook and thinking “how did I miss that meetup?” It turned out I hadn’t missed any meetup; they were all friends and just got together.

I will never forget the day when I was yet again in tears and my husband asked me, “when are you going to realize that they are not your friends?” I was furious at his reply at the time, but it hit me like a punch in the gut: he was right. They weren’t my friends. And what a blessing that turned out to be! They were NOT MY PEOPLE. Celebrate your uniqueness and know that in time you will find your people.